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AB 1798 restricts genetic information in life and disability underwriting

AB 1798 restricts specified genetic information in California life and disability insurance decisions and prohibits use or disclosure of a full genome. The September 30 law retains narrowly conditioned medical-record use to rule out an adverse finding, while distinguishing insurance underwriting from clinical genetic testing.

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What happened

California chaptered AB 1798 on September 30 as Chapter 897. The amended Insurance Code restricts life and disability insurers from cancelling, limiting, denying, or changing terms based on genetic-characteristic tests and from requesting or using genetic information for insurance purposes, subject to stated exceptions. The article defines disability insurance for this purpose to exclude health insurance, and its scope is therefore not interchangeable with a rule governing ordinary clinical genetic testing or every health-benefit claim. It expressly prohibits using or disclosing an individual's full genome.

The limited genetic-result exception requires authorized access to results already in the medical record, from a test that is not direct to consumer, to rule out an adverse finding, with informed written consent or the individual's provision of results. Separately, section 10148(h) preserves insurance decisions based on a present disease's manifestation, diagnosis, or treatment, including a medical-record diagnosis based on genetic testing. The text also addresses records needed solely to pay benefits or for therapeutic purposes and bars requiring a genetic test or asking whether the person or family were tested. These boundaries do not authorize full-genome use or disclosure.

Scope and timing

Authority status
Final
Applicability
Operationally relevant
Audience
Health systems, Provider networks
Jurisdiction
California
Recorded date
2027-01-01
Date type
effective

Why it matters

Clinical genetics and insurer relationships must distinguish the specified underwriting rule from general healthcare coverage or clinical testing requirements.

Sources

Complete edition and supplemental material

This finding in the complete approved report →

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